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A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
http://www.cherubs-cdh.org |
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
http://www.cafamily.org.uk |
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
http://www.hgfound.org/ |
Provides general information and a personal account, including pictures and X-rays.
http://www.gorhams.dk |
Information about NORD, its programs, special events and the variety of services offered.
http://www.rarediseases.org/ |
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
http://www.bh4.org |
Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets.
http://www.xlhnetwork.org/ |
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