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Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/ |
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| Google PR |
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works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca/ |
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| Google PR |
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international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.
http://www.9pminus.org/ |
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| Google PR |
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Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk/ |
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| Google PR |
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Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.
http://www.fodsupport.org/ |
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| Google PR |
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Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
http://www.geneclinics.org |
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| Google PR |
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provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups.
http://www.geneticalliance.org/ |
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| Google PR |
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national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases.
http://www.gig.org.uk/ |
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| Google PR |
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A non profit Organization dedicated to those families that are touched by a rare blood disease known as Hereditary Angioedema
http://www.hereditaryangioedema.com/ |
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| Google PR |
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nonprofit, basic science organization dedicated to the cure of genetic disease.
http://www.hdfoundation.org/ |
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| Google PR |
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